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the rssearch registry is the first national registry to capture data from physicians and patients about srs/sbrt. by capturing such information and providing access to physicians and patients, rssearch aims to: 1) gain insights into the demand for srs/sbrt, 2) guide practice and policy, 3) serve as an industry resource, 4) educate physicians and patients, and 5) provide a framework to measure and improve the quality of care for patients treated with srs/sbrt.
the rssearch review committee, composed of individuals including physicians, nurses, radiation oncologists and medical dosimetrists. the committee reviews data submissions to ensure the quality of the data and the integrity of the information collected. the committee is comprised of individuals who review data submissions to ensure data quality and integrity.
the rssearch review committee ensures data quality and integrity. the committee reviews and screens data submissions to ensure data quality and integrity. the committee is comprised of individuals who review data submissions to ensure data quality and integrity. the committee is the fiduciary of the rssearch dataset and supports the development of the rssearch registry and ensures the integrity of the rssearch dataset.
the rssearch review committee reviews data submissions to ensure data quality and integrity. the committee is comprised of individuals who review data submissions to ensure data quality and integrity. the committee is the fiduciary of the rssearch dataset and supports the development of the rssearch registry and ensures the integrity of the rssearch dataset.
data entry is initiated on the web interface. data are imported in a split-file format (eclipse) and all elements of the collected dataset (median follow-up time, number of events, prognostic factors, type of statistical analysis, etc.) are automatically processed in the centralized registry. site data is readily available from the user log-in page on the central server for audit and analyses. any deviation from the data entry plan is recorded and the reason is explained in the audit reports. data are edited in the web-based data entry tool and uploaded to the database via ftp or secure http. the data entry tool includes data quality checks that can be run by the data entry person. all new records are examined after they are entered into the database. as soon as any data entry errors are identified, the form is modified to correct them and a new record is uploaded with the new data. the web interface allows real-time checks of data quality. the registry of treatment and outcomes for an individual patient is public-accessible in real time on the web and can be viewed by the user while data are being entered (to allow on-line quality checks). a password-protected page is made available only for the principal investigator of that patient. the password is sent to the participant via e-mail. once the data on the public web page are viewed by the principal investigator, they can be immediately deleted and their access control can be changed. the quality of and adherence to the rssearch protocol at all participating centers is monitored and enforced by the rssearch data review committee. data are checked for outliers, duplicates, errors, and protocol violations; automated procedures are used for all data checks. the level of agreement is indicated by the kappa score. all centers are subject to periodic review and are expected to maintain data quality. if data quality is compromised, the center is instructed to correct the data and to notify rssearch of the correction. rssearch does not make financial or other compensation for data collection or quality assurance. 5ec8ef588b
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